For Caregivers

You Make the Recovery Journey Possible!

Thank you for visiting the NIBN website. As Peers—i.e., people living with an injured brain—we are so grateful for you, our Caregivers. You may be a family member, or you may be someone working closely with us and have become like family. We love you! We may not tell you that often enough, but it’s true. Each of us has our own unique challenges, and you help us navigate those challenges. Thank you. Thank you so very much.

This site is for you, too. Your life changed because of the injury we suffered. You are on your own journey, and there are so many people like you—people who have a loved one that they care for, advocate for, encourage and support. And in doing all those things, it’s often difficult. It seems like there’s no one who truly understands you and your personal situation. But, there is!

You are not alone as a Caregiver.

We hope that you can find each other through this site and through the Chapters, and provide understanding, support and encouragement for one another. We are together on this Recovery Journey, and we are all one Injured Brain Community, and we hope you consider participating in the following ways:

  • Sign up at the bottom of the Home page to receive our newsletter
  • Create a Profile and interact with other Caregivers, Peers and Providers via the Connection Board
  • Learn about the programs NIBN offers, and participate as you can
  • Join a Chapter and become active in your community (and help start a Chapter)
  • Contribute resources to our Resource Page so others can benefit
  • Allow yourself to be loved and supported by the people you interact with through this site

We look forward to interacting with you!

 

Key Takeaways

  • You are not alone, and this site is for you to connect with other Caregivers.
  • When united, Caregivers can help bring about needed changes to policies, programs and resources.
  • Depending on the nature of the injury, your Peer for whom you care may not be able to tell you how much he or she loves you. But they do.

Programs & Tools

Brain Injury Phases PDF

Peer Support PDF [DOCUMENT TO COME]

Definition of an Injured Brain PDF

Our Voice

Mouseover or place finger on mobile screen to pause testimonies.

Knowing there are other Caregivers experiencing what I’m experiencing gives me strength and hope.

Hollie, Hastings 
Hollie, Hastings

It’s hard to know she struggles, but I believe in her and it helps her continue.

June, Kearney 
June, Kearney

His brain injury brought us together and has made us close.

Susie, Kearney 
Susie, Kearney
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Support Forum Tips

1) Return Users: Use the top-left NIBN Member Login link to log in. You’ll be redirected to the Forum page after login.

2) New User Registration: Once on the Forum page, scroll down to the Forum dashboard to create your own account or click here to REGISTER then follow the prompts. After you have submitted your registration, you will be notified of what’s next, and you’ll also receive a confirmation email.

3) If your registration is approved, a second email notification will be sent to you. A login link will be included to help get you started. Log in with the username (or email address) and password used during registration.

4) Once logged in, you will be redirected to the Forum dashboard. Click on All Topics to begin your journey. On the Topics page, you can read the most recent topics and participate in the discussion, or start your own Topic by clicking the New Topic button.

5) You can subscribe or unsubscribe to email notifications for the entire Forum, or for any individual post.

6) When you create a Topic, a title or question is required, PLUS a brief explanation in the second text field. If you don’t include both, you will be prompted before you can submit the topic.

7) To update your profile picture or password, just go to the Membership Directory and find your profile card. You can use the search bar to narrow the results. Click your Edit Profile button. Next click the CHECKMARK which will change to Settings mode, then click the GEAR and choose MY ACCOUNT. The next screen will let you change your profile photo and password. Be sure to click the bottom button to save your changes.

8) If you want to log out, return to the Forum page and click Logout in the Forum Dashboard bar.

Forum Participant Agreement

1

If you create a profile, you are agreeing to make public your identity and contact information, and other people who have created a profile will be able to see your identity and contact information.

2

You are encouraged to ask questions and make comments to assist others. Please keep in mind that this service is not a medical or therapeutic offering from NIBN. Please keep your comments positive. NIBN leaders reserve the right to edit posts made by members.

3

You agree not to advertise for yourself or anyone with the intent to buy, sell, or trade anything.

4

You understand and agree that NIBN is not responsible for the accuracy of information shared by others via this Support Forum, and that NIBN is not recommending or endorsing any information posted by Peers on this site.

5

NIBN is only the means by which members communicate and does not vouch for any information posted on this forum. This service is all about members empowering each other with information, discussion, etc. NIBN’s only role is to try to keep the focus positive—but we are confident that our members will be able to do that.

Sign up and enjoy!

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